Subject Expert Perspectives
Providing practical knowledge of key topics impacting rare disease by subject experts. Developed through the State Zebra Network and its friends and partners.
Diagnosis
Newborn Screening
1-Pager (Source: EveryLife Foundation)
1-Pager (Source)
Video (Source)
Genetic Testing
1-Pager (Source)
1-Pager (Source)
Video (Source: WI Rare)
“Baby” Programs
Access and Availability
Copay / Accumulator
1-Pager (Source)
1-Pager (Source)
Video (Source)
Prior Authorization
1-Pager (Source)
1-Pager (Source)
Video (Source)
Gene Therapy
1-Pager (Source)
1-Pager (Source)
Video (Source)
Step Therapy
1-Pager (Source)
1-Pager (Source)
Video (Source)
PDAB – Prescription Drug Advisory Board
1-Pager (Source)
1-Pager (Source)
Video (Source)
Research and Clinical Trials
1-Pager (Source)
1-Pager (Source)
Video (Source)
Other
1-Pager (Source)
1-Pager (Source)
Video (Source)
