Skip to content
Home
Members
Events
Resources
Knowledge Center
Legislation
Contact Us
Home
Members
Events
Resources
Knowledge Center
Legislation
Contact Us
Resources
State Legislature Resources:
State Bill Lookup
2025 State Legislative Session Calendar
State Legislature Schedules
Newborn Screening Resources:
Baby’s
First Test
Recommended Uniform Screening Panel
Access to Care and Treatment Resources:
All
CoPays
Count Coalition
General Rare Disease US Based Advocacy (Federal and State) Resources:
EveryLife
Foundation for Rare Diseases
National Organization for Rare Diseases (NORD)
Patient Rising Coalition
Rare and Ready: Genetic Condition Coalition
